Friday, 13 August 2010
well finally got a name to my condition its called Arnold chiari syndrome type 1.just wish i could handle the full recommended dose topamax but at the minute they seem to make me worse.the GP was fascinated by it he said he'd herd of it before but not seen it but then again the neuro dr was the same but he never gave me actual name of it.I'm so sick of having a constant headache,apparently once we get my meds right I'll be OK the dizzy spells will subside and the bad heads will go.just want to be normal again.the GP told me that at this time they cant see whether my brain is to big or my 'spinal hole' is to small got to wait to see the surgeon.so at the mo I'm a medical marvel at health centre.oh well when we were kids me brother said i was an attention seeker lol xxx
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Once you get your meds figured out, it will change your life!! I still have my moments but Topamax has made it where I can live again! I still get dizzy spells if I stand up to fast, I can't lay on my stomach anymore. But so far no surgery for me and that is what I am hoping for. I also still get headaches but nothing like what I used to!!
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