day to day living with arnold chiari syndrome tpye1

in at lot of pain today my neck is really aching and the pressure in my head is unreal. i can tell i had a late night, but I'm determind not to to stop my life because of this but its really knocking my conidence its not nice when u go really dizzy in the middle of the supermarket and people look at you as if your drunk or on drugs, its as though i need a sign on my head saying ARNOLD CHIARI SYNDROME PLEASE DONT STARE, just because they cant see whats wrong.oh well i just have to keep thinking they are small minded people they are the freaks not me im special my doctor told me so hahahaha.anyway really enjoyed Julie and Danny's last night wedding they both looked so beautiful and happy and their kids looked so cute especially little Carla.enjoyed catching up with Charlotte and Charline and arranged for Charlotte and her son to come down for tea on friday Nathaniel will love that a new friend to play with.
thanks to my cousin tomorrow we are to see about getting the kids a tortose they saw hers and now want one of their own that should be fun.

well finally got a name to my condition its called Arnold chiari syndrome type 1.just wish i could handle the full recommended dose topamax but at the minute they seem to make me worse.the GP was fascinated by it he said he'd herd of it before but not seen it but then again the neuro dr was the same but he never gave me actual name of it.I'm so sick of having a constant headache,apparently once we get my meds right I'll be OK the dizzy spells will subside and the bad heads will go.just want to be normal again.the GP told me that at this time they cant see whether my brain is to big or my 'spinal hole' is to small got to wait to see the surgeon.so at the mo I'm a medical marvel at health centre.oh well when we were kids me brother said i was an attention seeker lol xxx